{"id":256,"date":"2021-08-10T11:04:01","date_gmt":"2021-08-10T18:04:01","guid":{"rendered":"https:\/\/blogs.ubc.ca\/imhablog\/?p=256"},"modified":"2023-06-05T10:12:36","modified_gmt":"2023-06-05T17:12:36","slug":"co-creating-through-social-media-crowdsourcing","status":"publish","type":"post","link":"https:\/\/blogs.ubc.ca\/imhablog\/2021\/08\/10\/co-creating-through-social-media-crowdsourcing\/","title":{"rendered":"Co-creating through Social Media Crowdsourcing \/ La cocr\u00e9ation et les r\u00e9seaux sociaux font bon m\u00e9nage"},"content":{"rendered":"<h3><strong>Developing an infographic with and for patient partners about conference abstracts <\/strong><\/h3>\n<h4><strong>by Dr. Dawn Richards<\/strong><\/h4>\n<p>&nbsp;<\/p>\n<p><em>Le fran\u00e7ais suit \/ French follows<\/em><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-262 aligncenter\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Screen-Shot-2021-08-10-at-9.42.26-AM-300x181.png\" alt=\"\" width=\"490\" height=\"296\" srcset=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Screen-Shot-2021-08-10-at-9.42.26-AM-300x181.png 300w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Screen-Shot-2021-08-10-at-9.42.26-AM-1024x618.png 1024w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Screen-Shot-2021-08-10-at-9.42.26-AM-768x464.png 768w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Screen-Shot-2021-08-10-at-9.42.26-AM-1536x928.png 1536w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Screen-Shot-2021-08-10-at-9.42.26-AM-800x483.png 800w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Screen-Shot-2021-08-10-at-9.42.26-AM.png 1765w\" sizes=\"auto, (max-width: 490px) 100vw, 490px\" \/><\/p>\n<p>The research and scientific worlds are full of processes and protocols that most people in these worlds take for granted. One of these items is the <strong>conference abstract<\/strong>. If you\u2019re not in the research world, how would you describe a conference abstract to someone outside of research?<\/p>\n<p>In planning for the Canadian Arthritis Research Conference 2022 (CARC), the Steering Committee created a new category of abstracts, those prepared and submitted by patients. The idea is to encourage more patients to submit abstracts for consideration to the conference, but how can you do that if you don\u2019t even know what an abstract is? What happened was an organic process:<\/p>\n<ul>\n<li>I put out an initial call on Twitter from @TO_dpr, and asked patient partners to let me know if a resource or tool helping people know more about what abstracts are would be helpful. The overwhelming response was \u2018yes.\u2019<\/li>\n<li>Next, I drafted some text that described what an abstract is, what it&#8217;s used for and what the parts of an abstract are. My goal was to help demystify abstracts.<\/li>\n<li>Back on Twitter again, I followed up my original tweet and asked people to comment on the text for me via Google Forms, so that we could ultimately create something that was useful to patient partners. Through Google Forms I collected responses from 17 individuals, and incorporated their feedback into the text about abstracts.<\/li>\n<li>From there, my communications colleague helped to put the text into an infographic that made everything feel simple and uncluttered.<\/li>\n<li>I circled back to everyone who provided me with input \u2013 to let them know how they contributed, and where they can find the infographic, and if they wanted to be thanked, they are acknowledged on the infographic itself.<\/li>\n<\/ul>\n<p>View the full Infographic in English here: <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Infographic_Abstract-Preparation-for-Conferences.pdf\">Infographic_Abstract Preparation for Conferences <\/a>and in French: <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Infographic-_-Abstract-Preparation-for-Conferences-_FR.pdf\">Infographic _ Abstract Preparation for Conferences _FR<\/a><\/p>\n<p>Within a matter of weeks, we went from having an idea about a resource on conference abstracts to having an infographic about conference abstracts created with input from patients. Engaging patients to co-create resources doesn\u2019t always need to be a large, formal project. Our little project shows the power of taking a fairly simple idea, crowdsourcing input from patients through social media, and then putting that input in to action to create an infographic that anyone can use. We hope knowing this helps you with any of your co-creation projects \u2013 from big to small.<\/p>\n<h3>Cr\u00e9ation d\u2019une infographie en collaboration avec les patients partenaires sur la pr\u00e9paration d\u2019un r\u00e9sum\u00e9 en vue d\u2019un congr\u00e8s<\/h3>\n<h4>Dre Dawn Richards<\/h4>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-473 aligncenter\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/French-Still-Blog-300x185.png\" alt=\"\" width=\"441\" height=\"272\" srcset=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/French-Still-Blog-300x185.png 300w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/French-Still-Blog.png 759w\" sizes=\"auto, (max-width: 441px) 100vw, 441px\" \/><\/p>\n<p>Les mondes de la recherche et de la science regorgent de processus et de protocoles que la plupart des experts tiennent pour acquis. Parmi ces \u00e9l\u00e9ments, on retrouve les <strong>r\u00e9sum\u00e9s r\u00e9dig\u00e9s en vue d\u2019un congr\u00e8s<\/strong>. Si vous ne faisiez pas partie du monde de la recherche, comment d\u00e9cririez-vous ces r\u00e9sum\u00e9s \u00e0 une personne n\u00e9ophyte?<\/p>\n<p>Durant la planification de l\u2019\u00e9dition\u00a02022 de la Conf\u00e9rence canadienne de recherche sur l\u2019arthrite (CCRA), le comit\u00e9 directeur a cr\u00e9\u00e9 une nouvelle cat\u00e9gorie de r\u00e9sum\u00e9s, soit ceux pr\u00e9par\u00e9s et soumis par des patients. Le but \u00e9tait d\u2019encourager davantage de patients \u00e0 soumettre des r\u00e9sum\u00e9s pour le congr\u00e8s. Mais comment s\u2019y prendre quand on ne sait pas ce qu\u2019est un r\u00e9sum\u00e9 exactement? Une fois la question pos\u00e9e, la r\u00e9ponse n\u2019a pas tard\u00e9 \u00e0 venir de fa\u00e7on tout \u00e0 fait naturelle\u00a0:<\/p>\n<ul>\n<li>J\u2019ai d\u2019abord lanc\u00e9 un appel \u00e0 tous sur Twitter \u00e0 partir du compte @TO_dpr pour demander aux patients partenaires si une ressource ou un outil expliquant ce qu\u2019\u00e9tait un r\u00e9sum\u00e9 leur serait utile. Ils ont presque unanimement r\u00e9pondu \u00ab\u00a0oui\u00a0\u00bb.<\/li>\n<li>J\u2019ai ensuite r\u00e9dig\u00e9 un texte d\u00e9crivant le r\u00e9sum\u00e9, notamment son utilisation et les diff\u00e9rents \u00e9l\u00e9ments qui le composent. Mon objectif \u00e9tait de d\u00e9mystifier les r\u00e9sum\u00e9s.<\/li>\n<li>De retour sur Twitter, j\u2019ai donn\u00e9 suite \u00e0 mon gazouillis initial en demandant aux gens de m\u2019envoyer leurs commentaires sur mon texte dans un formulaire Google, pour que nous puissions proposer une ressource utile aux patients partenaires. Sur Google Formulaires, j\u2019ai recueilli les commentaires de 17\u00a0personnes et les ai incorpor\u00e9s \u00e0 mon texte.<\/li>\n<li>Une personne avec laquelle je travaille qui s\u2019y conna\u00eet en communication m\u2019a ensuite aid\u00e9e \u00e0 convertir mon texte en une infographie pr\u00e9sentant l\u2019information de fa\u00e7on simple et \u00e9pur\u00e9e.<\/li>\n<li>J\u2019ai \u00e9crit \u00e0 toutes les personnes qui m\u2019avaient envoy\u00e9 leurs commentaires pour leur dire comment elles avaient contribu\u00e9 et o\u00f9 elles pouvaient trouver l\u2019infographie, et pour leur demander si elles souhaitaient que leur nom figure directement sur l\u2019infographie en guise de remerciement.<\/li>\n<\/ul>\n<p>Vous pouvez consulter l\u2019infographie ici\u00a0: <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Infographic_Abstract-Preparation-for-Conferences.pdf\">Infographic \u2013 Abstract Preparation for Conferences\u00a0<\/a>(anglais) ou <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2021\/08\/Infographic-_-Abstract-Preparation-for-Conferences-_FR.pdf\">Infographie \u2013 Pr\u00e9paration d\u2019un r\u00e9sum\u00e9 pour un congr\u00e8s _FR<\/a> (fran\u00e7ais)<\/p>\n<p>En quelques semaines, nous sommes donc pass\u00e9s d\u2019une simple id\u00e9e \u00e0 une ressource bien concr\u00e8te, cr\u00e9\u00e9e en collaboration avec des patients. De toute \u00e9vidence, la mobilisation des patients ne se limite pas aux gros projets officiels. Notre modeste projet montre l\u2019efficacit\u00e9 d\u2019une id\u00e9e plut\u00f4t simple \u2013 recueillir les commentaires de patients au moyen des r\u00e9seaux sociaux \u2013 pour cr\u00e9er une infographie accessible \u00e0 tous. Nous esp\u00e9rons que cette histoire de r\u00e9ussite vous guidera dans vos propres projets de cocr\u00e9ation, quelle que soit leur taille.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Developing an infographic with and for patient partners about conference abstracts by Dr. Dawn Richards &nbsp; Le fran\u00e7ais suit \/ French follows The research and scientific worlds are full of processes and protocols that most people in these worlds take &hellip; <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2021\/08\/10\/co-creating-through-social-media-crowdsourcing\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":84324,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[32,37,34,39,36,38],"class_list":["post-256","post","type-post","status-publish","format-standard","hentry","category-patient-engagement","tag-carc2022","tag-abstract-development","tag-abstract-preparation","tag-abstracts-for-conferences","tag-infographic","tag-patient-partners"],"_links":{"self":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/256","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/users\/84324"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/comments?post=256"}],"version-history":[{"count":11,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/256\/revisions"}],"predecessor-version":[{"id":474,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/256\/revisions\/474"}],"wp:attachment":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/media?parent=256"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/categories?post=256"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/tags?post=256"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}