{"id":480,"date":"2023-06-28T19:24:01","date_gmt":"2023-06-29T02:24:01","guid":{"rendered":"https:\/\/blogs.ubc.ca\/imhablog\/?p=480"},"modified":"2023-06-29T11:18:17","modified_gmt":"2023-06-29T18:18:17","slug":"engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved","status":"publish","type":"post","link":"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/","title":{"rendered":"Engaging Patient Partners as Peer Reviewers of Grant Applications: Tips for Everyone Involved"},"content":{"rendered":"<h3>By: <strong>Dawn Richards, Deb Baranec, Eileen Davidson, Trudy Flynn<\/strong><\/h3>\n<p><em>Le fran\u00e7ais suit \/ French follows<\/em><\/p>\n<h2><strong>What is peer review anyway?<\/strong><\/h2>\n<p>The peer review process can be strange and slightly confusing if you\u2019re not in academia or new to the process. At its simplest, peer review is a process used by an organization that funds research to review grant applications that have been submitted to be considered for funding. Funding organizations include the Canadian Institutes of Health Research, a health or other charity, and research foundations. While the exact process may be different depending on the organization, generally grant applications are \u2018assigned\u2019 to people who are called \u2018reviewers\u2019. Organizations will select reviewers who have the experience or expertise to assess the applications.<\/p>\n<p>Often, a group of reviewers is assigned to each application and will discuss how they rate it at a virtual or in-person peer review meeting. Before the meeting, reviewers spend time reading and assessing each application based on a set of criteria created from the specific objectives of that research funding competition. They will share their assessments at the peer review meeting and discuss them with other reviewers. Reviewers may decide to change their assessment based on the discussions that take place with other peer reviewers at a meeting.<\/p>\n<p><em>*<\/em>\u00a0<em> Ref: Peer Review Overview &#8211; <\/em><a href=\"https:\/\/cihr-irsc.gc.ca\/e\/39380.html\"><em>https:\/\/cihr-irsc.gc.ca\/e\/39380.html<\/em><\/a><\/p>\n<p><a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/network-visual\/\" rel=\"attachment wp-att-498\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-498\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-300x105.png\" alt=\"Blue background with abstract visual representation of a network of individuals shown by icons connected with lines.\" width=\"506\" height=\"177\" srcset=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-300x105.png 300w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-1024x358.png 1024w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-768x269.png 768w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-1536x538.png 1536w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575.png 1600w\" sizes=\"auto, (max-width: 506px) 100vw, 506px\" \/><\/a><\/p>\n<h2><strong>Patient partners as peer reviewers of grant applications<\/strong><\/h2>\n<p>Some organizations that do peer review are now including patient partners in the process. Patient partners bring lived experience and expertise that complements the expertise of other reviewers who may be researchers, clinicians, and others (e.g., people from community- and not-for-profit organizations, etc.).<\/p>\n<p>Organizations may involve patient partners in different ways. Sometimes patient partners are asked to read and review only part of the grant application and sometimes they\u2019re asked to review the grant application the same as any other reviewer. Patient partners are asked to bring all of their skills and experiences to the review which may include their patient perspective and for some it may also mean critiquing the proposed research. For many patient partners, peer review of grant applications is a new concept and a different way to be involved in research.<\/p>\n<p>As patient partners who have been involved in peer review, we thought it would be helpful to use our own experiences to offer some advice to other patient partners as well as to people and organizations who are running peer review that involves patient partners. Our hope is that we can help make this a smooth and informed process for everyone who is involved.<\/p>\n<p>The table below is structured for different points in the peer review process of grant applications and there is a column for what patient partners might find helpful to ask\/know about the process and there is a column to help people and organizations consider what might be most helpful to share about their processes with patient partners.<\/p>\n<h2><strong><em>Tips on involving patient partners in peer review of grant applications &#8211; questions to ask and things to consider based on the time point in the <\/em><\/strong><strong><em>process<\/em><\/strong><\/h2>\n<h3>Note: Downloadable PDFs of the below tables are available here:<\/h3>\n<p><a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/patient-partners-graphic\/\" rel=\"attachment wp-att-494\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-494\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic-300x208.png\" alt=\"\" width=\"159\" height=\"110\" srcset=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic-300x208.png 300w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic.png 386w\" sizes=\"auto, (max-width: 159px) 100vw, 159px\" \/><\/a> Patient Partners download <a href=\"https:\/\/bit.ly\/PatientPartners-Table\">here<\/a>.<\/p>\n<p><a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/peopleorganizations-graphic\/\" rel=\"attachment wp-att-495\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-495\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/PeopleOrganizations-Graphic-300x176.png\" alt=\"\" width=\"163\" height=\"95\" \/><\/a>People\/Organizations download <a href=\"https:\/\/bit.ly\/Organizations-Table-Eng\">here<\/a>.<\/p>\n<h2><strong>Before\/preparing for the peer review meeting<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p><strong>Patient Partners<\/strong> <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/patient-partners-graphic\/\" rel=\"attachment wp-att-494\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-494\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic-300x208.png\" alt=\"\" width=\"61\" height=\"42\" srcset=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic-300x208.png 300w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic.png 386w\" sizes=\"auto, (max-width: 61px) 100vw, 61px\" \/><\/a><\/p>\n<ul>\n<li>Do I have the \u2018right\u2019 lived experience for this (e.g., maybe I live with one condition and I\u2019m being asked to review a grant application about another condition)? Do I feel comfortable with this?<\/li>\n<li>Do I have the time for this role, and what is the amount of time it might take?<\/li>\n<li>How many applications am I expected to review and about how long will each application take to review?<\/li>\n<li>Is there a template to fill out as I review each application? How does scoring work?<\/li>\n<li>Do I need to read and review the entire application or just part of the application?<\/li>\n<li>Is there an orientation session &#8211; how will the process be explained to me?<\/li>\n<li>Do I have a contact for one-on-one support if I have questions while I\u2019m reviewing?<\/li>\n<li>Will I need to use technology to submit my reviews? Who can help me if I have issues with the technology?<\/li>\n<li>Will I be part of a peer review meeting or will I just submit my reviews? If there is a meeting, is it virtual or is it in-person? If it is in person, where is it (and how will that affect me), and will my expenses be paid or pre-paid to attend?<\/li>\n<li>How long will the meeting be?<\/li>\n<li>What does the whole process look like in terms of the overall timeline from when I am assigned my reviews to the peer review meeting itself, meetings, etc.?<\/li>\n<li>How many other patient partners are reviewing and what is the size of the whole review panel?<\/li>\n<li>Can patient partners be in contact or talk to each other before the meeting to support each other? If not, can I talk to a patient partner who has done this before and who might be able to mentor me informally?<\/li>\n<li>Is there a research glossary I can use if some of the research terms are not familiar to me?<\/li>\n<li>Have I kept my reviews concise and constructive, and do my scores (if there are scores) reflect my comments?<\/li>\n<li>Is the process confidential, and do I need to sign any paperwork about this?<\/li>\n<li>Has the competition\u2019s approach to conflict of interest been explained to me (i.e., what do I do if I know the researcher or research team on an application that has been assigned to me?)?<\/li>\n<li>Will there be food and drinks supplied (whether the meeting is virtual or not), and who can I talk to if I have dietary restrictions?<\/li>\n<li>If I need childcare, will it be paid for?<\/li>\n<\/ul>\n<p><strong>People\/Organizations <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/peopleorganizations-graphic\/\" rel=\"attachment wp-att-495\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-495\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/PeopleOrganizations-Graphic-300x176.png\" alt=\"\" width=\"76\" height=\"45\" \/><\/a><\/strong><\/p>\n<ul>\n<li>Do the patient partners you have invited to review represent a diversity of perspectives?<\/li>\n<li>Will you share expectations of patient partners (e.g. do they review the whole application or just a section?)?<\/li>\n<li>Will you host an orientation session with all patient partners so you can: review the entire process, including any templates or information about scoring; clearly explain the timeline for the process; provide an overview of any technology used; and, go over any logistics related to the meeting (e.g., how long it is, if it\u2019s virtual or in-person, etc.); and so patient partners can ask questions and meet the chair of the peer review panel, etc.?<\/li>\n<li>If the review meeting is in person, have you arranged for pre-payment of patient partner reviewer\u2019s expenses related to travel? Will reimbursement be timely and can someone support filling out an expense report?<\/li>\n<li>Have you taken into account all logistics related to food and drinks supplied (whether the meeting is virtual or not), and dietary restrictions? (e.g., for virtual meetings, having food delivered is appreciated if it\u2019s possible)<\/li>\n<li>Will childcare costs be covered for patient partner peer reviewers?<\/li>\n<li>Will patient partners who are peer reviewers be able to talk to each other as they review the applications so they can support each other? Does your organization have a way that patient partner reviewers can mentor each other?<\/li>\n<li>Will you make the process as simple as possible for patient partner reviewers?<\/li>\n<li>Will you provide a key contact at your organization for patient partners to ask questions?<\/li>\n<li>Is there a research glossary for patient partners to use if some of the research terms are not familiar to them?<\/li>\n<li>Are patient partner reviewers familiar with declaring conflicts of interest if they know researchers who have applied to the competition?<\/li>\n<li>If there is any paperwork related to confidentiality of the review, is this in easy to read, understandable language that you will review and explain to patient partners?<\/li>\n<li>Will you communicate clearly about there being an honorarium or not? Will there be tax paperwork provided by your organization based on this?<\/li>\n<\/ul>\n<h2><strong>At the peer review meeting<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p><strong>Patient Partners<\/strong> <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/patient-partners-graphic\/\" rel=\"attachment wp-att-494\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-494\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic-300x208.png\" alt=\"\" width=\"61\" height=\"42\" srcset=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic-300x208.png 300w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic.png 386w\" sizes=\"auto, (max-width: 61px) 100vw, 61px\" \/><\/a><\/p>\n<ul>\n<li>Has the approach to the meeting and how it \u2018works\u2019 been explained well to me?<\/li>\n<li>If the review meeting is virtual, do I have to be at the entire meeting with my camera on?<\/li>\n<li>Will I be asked to comment on applications that weren\u2019t \u2018assigned\u2019 to me?<\/li>\n<li>When will I be asked to share my comments in the order of the reviewers?<\/li>\n<li>Are there breaks in the meeting, and are those enough for me? What if I need to move during the meeting (no matter the format)?<\/li>\n<li>If the meeting is virtual, what is the technology that will be used? What happens if I need help?<\/li>\n<li>How does it work if\/when I have a conflict of interest with an application that is being reviewed?<\/li>\n<li>Am I allowed to change my scores in the meeting based on the conversation that takes place with other peer reviewers?<\/li>\n<\/ul>\n<p><strong>People\/Organizations <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/peopleorganizations-graphic\/\" rel=\"attachment wp-att-495\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-495\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/PeopleOrganizations-Graphic-300x176.png\" alt=\"\" width=\"76\" height=\"45\" \/><\/a><\/strong><\/p>\n<ul>\n<li>Have you explained how the meeting \u2018works\u2019 to patient partners?<\/li>\n<li>Has the meeting \u2018decorum\u2019 been explained to everyone (e.g., if people need to move\/stretch between breaks, cameras being on\/off during virtual meetings)<\/li>\n<li>Have you scheduled enough breaks during review for reviewers? Keep in mind that many patient partners (and all reviewers) would benefit from more frequent breaks.<\/li>\n<\/ul>\n<h2><strong>After the peer review meeting<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p><strong>Patient Partners<\/strong> <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/patient-partners-graphic\/\" rel=\"attachment wp-att-494\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-494\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic-300x208.png\" alt=\"\" width=\"61\" height=\"42\" srcset=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic-300x208.png 300w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patient-Partners-Graphic.png 386w\" sizes=\"auto, (max-width: 61px) 100vw, 61px\" \/><\/a><\/p>\n<ul>\n<li>Is all of my paperwork related to the reviews submitted?<\/li>\n<li>Will I receive notes or minutes from the peer review meeting, and know which applications were funded?<\/li>\n<li>Can I provide feedback on my experience, how will this feedback be collected, and am I comfortable with this? (e.g., will it be via anonymous survey or through a meeting, etc.)?<\/li>\n<li>Will I receive feedback on my contributions so I might learn from the process?<\/li>\n<li>Will I be able to share my experiences with other patient partners who are asked to peer review for this organization?<\/li>\n<li>Would I like to peer review again for this organization, and if so, have I let my contact there know?<\/li>\n<li>If I am out of pocket for any expenses for the meeting, when can I expect to be reimbursed? When can I expect to receive my honorarium (if there is one)?<\/li>\n<\/ul>\n<p><strong>People\/Organizations <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/peopleorganizations-graphic\/\" rel=\"attachment wp-att-495\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-495\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/PeopleOrganizations-Graphic-300x176.png\" alt=\"\" width=\"76\" height=\"45\" \/><\/a><\/strong><\/p>\n<ul>\n<li>Have you been clear about notes or minutes from the peer review meeting being provided back to peer reviewers and the timeline associated with this?<\/li>\n<li>Do you have a feedback mechanism so you can learn about how the process was for patient partners (and is this appropriate in the event someone has negative feedback)? Have you made it clear how feedback will be used to improve the experience for other patient partner reviewers?<\/li>\n<li>Do you have a plan to provide feedback to patient partners on their reviews so they may learn from the experience?<\/li>\n<li>Have you checked to see if patient partners who participated in the review meeting would be interested in reviewing again? What about in mentoring other patient partners (formally or informally)?<\/li>\n<li>Have you taken care of all expenses and honoraria for patient partners related to the meeting in a timely way?<\/li>\n<\/ul>\n<p>Given that more organizations are starting to involve patient partners in this process, we hope this blog is helpful to explain what peer review of grant applications is (generally), and the types of questions\/items that need to be considered when fully integrating patient partners in peer review of grant applications. We believe that involving patient partners in peer review of grant applications can help lead to more relevant research being funded and done. We\u2019ve been part of review meetings where patient partners have brought unique perspectives that other peer reviewers have not considered.<\/p>\n<hr \/>\n<h1><strong>Participation des patients partenaires \u00e0 l\u2019\u00e9valuation par les pairs\u00a0: conseils pour toutes les parties<\/strong><\/h1>\n<h2><strong>Qu\u2019est-ce que l\u2019\u00e9valuation par les pairs? <\/strong><\/h2>\n<p>Le processus d\u2019\u00e9valuation par les pairs peut para\u00eetre \u00e9trange et un peu d\u00e9routant si vous ne le connaissez pas d\u00e9j\u00e0 ou ne travaillez pas dans le milieu universitaire. Pour faire simple, il s\u2019agit d\u2019un processus suivi par un organisme de financement de la recherche, comme les Instituts de recherche en sant\u00e9 du Canada (IRSC), un organisme de bienfaisance du domaine de la sant\u00e9 ou d\u2019un autre domaine ou encore une fondation de recherche, afin d\u2019\u00e9valuer des demandes de subvention. Bien que le d\u00e9tail puisse varier d\u2019un organisme \u00e0 l\u2019autre, l\u2019id\u00e9e reste la m\u00eame\u00a0: les demandes de subvention sont assign\u00e9es \u00e0 des personnes qu\u2019on appelle des \u00ab\u00a0\u00e9valuateurs\u00a0\u00bb, choisies par l\u2019organisme en fonction de leur expertise et exp\u00e9rience.<\/p>\n<p>Chaque demande est g\u00e9n\u00e9ralement confi\u00e9e \u00e0 un groupe d\u2019\u00e9valuateurs qui la lit et l\u2019examine en tenant compte d\u2019un ensemble de crit\u00e8res fond\u00e9s sur les objectifs du concours en question. Les \u00e9valuateurs se r\u00e9unissent ensuite en personne ou virtuellement pour pr\u00e9senter leurs constatations et d\u00e9battre des cotes \u00e0 attribuer \u00e0 la demande. Les \u00e9valuateurs peuvent par la suite d\u00e9cider de modifier leur \u00e9valuation en fonction des discussions qui ont lieu au cours de la r\u00e9union.<\/p>\n<p><em>*<\/em>\u00a0<em> Aper\u00e7u \u00a0de l\u2019\u00e9valuation par les pairs des IRSC\u00a0: <a href=\"https:\/\/cihr-irsc.gc.ca\/f\/39380.html\">https:\/\/cihr-irsc.gc.ca\/f\/39380.html<\/a><\/em><\/p>\n<p><a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/network-visual\/\" rel=\"attachment wp-att-498\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-498\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-300x105.png\" alt=\"Blue background with abstract visual representation of a network of individuals shown by icons connected with lines.\" width=\"506\" height=\"177\" srcset=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-300x105.png 300w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-1024x358.png 1024w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-768x269.png 768w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575-1536x538.png 1536w, https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Network-visual-e1687973428575.png 1600w\" sizes=\"auto, (max-width: 506px) 100vw, 506px\" \/><\/a><\/p>\n<h2><strong>Les patients partenaires comme pairs \u00e9valuateurs <\/strong><\/h2>\n<p>Certains organismes font d\u00e9sormais appel \u00e0 des patients partenaires pour l\u2019\u00e9valuation par les pairs. Ce n\u2019est pas un hasard\u00a0: l\u2019exp\u00e9rience et l\u2019expertise de ces derniers viennent compl\u00e9ter celles des chercheurs, des cliniciens et des autres personnes (issues par exemple d\u2019organisations communautaires et d\u2019organismes sans but lucratif) occupant normalement le r\u00f4le d\u2019\u00e9valuateur.<\/p>\n<p>Il n\u2019y a pas qu\u2019une seule fa\u00e7on de proc\u00e9der. Certains patients partenaires ont pour t\u00e2che de lire et d\u2019analyser une partie pr\u00e9cise de la demande, alors que d\u2019autres \u00e9valuent la demande au complet comme le ferait n\u2019importe quel autre \u00e9valuateur. Les patients partenaires sont invit\u00e9s \u00e0 puiser dans toutes leurs connaissances et leurs exp\u00e9riences pour effectuer leur travail, notamment en faisant part de leur v\u00e9cu en tant que patient ou en critiquant la recherche propos\u00e9e. Cela dit, pour bon nombre d\u2019entre eux, il s\u2019agit d\u2019une fa\u00e7on compl\u00e8tement nouvelle de prendre part \u00e0 la recherche.<\/p>\n<p>\u00c9tant nous-m\u00eames pass\u00e9es par l\u00e0, nous avons d\u00e9cid\u00e9 de tirer parti de notre exp\u00e9rience pour donner quelques conseils non seulement aux patients partenaires, mais aussi aux gens et aux organismes qui font appel \u00e0 leurs services. Nous esp\u00e9rons ainsi \u00e9clairer toutes les parties afin d\u2019assurer le bon d\u00e9roulement du processus.<\/p>\n<p>Les tableaux ci-dessous sont structur\u00e9s en fonction des diff\u00e9rentes \u00e9tapes du processus d\u2019\u00e9valuation. Ils comportent une colonne indiquant ce que les patients partenaires pourraient juger utile de demander ou de savoir, ainsi qu\u2019une colonne destin\u00e9e \u00e0 aider les organismes et les responsables de l\u2019\u00e9valuation par les pairs \u00e0 d\u00e9terminer les renseignements \u00e0 communiquer aux patients partenaires.<\/p>\n<h2><strong><em>Conseils sur la participation de patients partenaires \u00e0 l\u2019\u00e9valuation par les pairs\u00a0: questions \u00e0 poser et \u00e9l\u00e9ments \u00e0 prendre en compte \u00e0 chaque \u00e9tape<\/em><\/strong><\/h2>\n<p id=\"tw-target-text\" class=\"tw-data-text tw-text-large tw-ta\" dir=\"ltr\" data-placeholder=\"Translation\"><strong><span class=\"Y2IQFc\" lang=\"fr\">Les PDF t\u00e9l\u00e9chargeables des tableaux ci-dessous sont disponibles ici\u00a0:<\/span><\/strong><\/p>\n<p><a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/patients-partenaires\/\" rel=\"attachment wp-att-510\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-510\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patients-partenaires.png\" alt=\"\" width=\"163\" height=\"110\" \/><\/a> Patients partenaires <a href=\"https:\/\/bit.ly\/patients-partenaires-PDF\">ici<\/a>.<\/p>\n<p><a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/responsables-et-organismes\/\" rel=\"attachment wp-att-511\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-511\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Responsables-et-organismes.png\" alt=\"\" width=\"159\" height=\"105\" \/><\/a> Responsables et organismes <a href=\"https:\/\/bit.ly\/Responsables-organismes-PDF\">ici.<\/a><\/p>\n<h2><strong>Avant la r\u00e9union d\u2019\u00e9valuation par les pairs<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p><strong>Patients partenaires<\/strong> <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/patients-partenaires\/\" rel=\"attachment wp-att-510\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-510\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patients-partenaires.png\" alt=\"\" width=\"64\" height=\"43\" \/><\/a><\/p>\n<ul>\n<li>Mon exp\u00e9rience est-elle pertinente (p. ex. la demande porte-t-elle sur une maladie autre que la mienne)? Suis-je \u00e0 l\u2019aise d\u2019\u00e9valuer cette demande?<\/li>\n<li>Ai-je le temps d\u2019occuper le r\u00f4le d\u2019\u00e9valuateur? Combien de temps dois-je m\u2019attendre \u00e0 y consacrer?<\/li>\n<li>Combien de demandes dois-je \u00e9valuer et combien de temps dois-je consacrer \u00e0 chacune d\u2019entre elles?<\/li>\n<li>Existe-t-il un mod\u00e8le d\u2019\u00e9valuation \u00e0 remplir pour chaque demande? Comment fonctionne l\u2019attribution des cotes?<\/li>\n<li>Dois-je lire et \u00e9valuer l\u2019ensemble de la demande ou seulement une partie?<\/li>\n<li>Y a-t-il une s\u00e9ance de formation? Comment le processus me sera-t-il expliqu\u00e9?<\/li>\n<li>Puis-je communiquer avec une personne-ressource si j\u2019ai des questions au cours de l\u2019\u00e9valuation?<\/li>\n<li>Devrai-je utiliser certains outils technologiques pour soumettre mes \u00e9valuations? \u00c0 qui puis-je m\u2019adresser si je rencontre des difficult\u00e9s avec ces outils?<\/li>\n<li>Dois-je participer \u00e0 une r\u00e9union d\u2019\u00e9valuation par les pairs ou seulement soumettre mes \u00e9valuations? S\u2019il y a une r\u00e9union, aura-t-elle lieu virtuellement ou en personne? Si elle a lieu en personne, o\u00f9 se d\u00e9roulera-t-elle (et quelles seront les cons\u00e9quences pour moi)? Les frais \u00e0 engager pour y assister seront-ils rembours\u00e9s ou pay\u00e9s \u00e0 l\u2019avance?<\/li>\n<li>Quelle sera la dur\u00e9e de la r\u00e9union?<\/li>\n<li>Quel est le calendrier du processus dans son ensemble, depuis l\u2019attribution des demandes \u00e0 \u00e9valuer jusqu\u2019\u00e0 la r\u00e9union d\u2019\u00e9valuation par les pairs, en passant par les autres rencontres?<\/li>\n<li>Combien d\u2019autres patients partenaires participent \u00e0 l\u2019\u00e9valuation et combien de membres le comit\u00e9 d\u2019\u00e9valuation compte-t-il en tout? Dans le cas contraire, puis-je parler \u00e0 un patient partenaire qui a d\u00e9j\u00e0 effectu\u00e9 des \u00e9valuations et pourrait me conseiller de mani\u00e8re informelle?<\/li>\n<li>Existe-t-il un glossaire que je pourrais consulter si je rencontre certains termes que je ne connais pas?<\/li>\n<li>Mes \u00e9valuations sont-elles concises et constructives, et mes cotes (le cas \u00e9ch\u00e9ant) concordent-elles avec mes commentaires?<\/li>\n<li>Le processus est-il confidentiel? Dois-je signer un document \u00e0 ce propos?<\/li>\n<li>L\u2019approche du concours en mati\u00e8re de conflits d\u2019int\u00e9r\u00eats m\u2019a-t-elle \u00e9t\u00e9 expliqu\u00e9e (p. ex. que dois-je faire si je connais le chercheur ou l\u2019\u00e9quipe de recherche ayant soumis la demande qui m\u2019a \u00e9t\u00e9 confi\u00e9e)?<\/li>\n<li>M\u2019offrira-t-on quelque chose \u00e0 boire et \u00e0 manger (que la r\u00e9union se d\u00e9roule en personne ou non)? \u00c0 qui puis-je m\u2019adresser si j\u2019ai des restrictions alimentaires?<\/li>\n<li>Si j\u2019ai besoin de services de garde, ces frais seront-ils rembours\u00e9s?<\/li>\n<\/ul>\n<p><strong>Responsables et organismes <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/responsables-et-organismes\/\" rel=\"attachment wp-att-511\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-511\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Responsables-et-organismes.png\" alt=\"\" width=\"86\" height=\"57\" \/><\/a><\/strong><\/p>\n<ul>\n<li>Les patients partenaires que vous avez recrut\u00e9s permettent-ils d\u2019avoir des points de vue diff\u00e9rents?<\/li>\n<li>Communiquerez-vous aux patients partenaires ce qu\u2019on attend d\u2019eux? Par exemple, devront-ils \u00e9valuer une demande dans sa totalit\u00e9 ou une partie seulement?<\/li>\n<li>Organiserez-vous une s\u00e9ance de formation avec tous les patients partenaires afin, entre autres, de passer en revue l\u2019ensemble du processus (notamment les mod\u00e8les et les renseignements sur la cotation), d\u2019expliquer clairement le calendrier du processus, de donner un aper\u00e7u des outils technologiques utilis\u00e9s, de r\u00e9gler les questions logistiques relatives \u00e0 la r\u00e9union (par exemple, sa dur\u00e9e et sa formule [virtuelle ou en personne]) et de permettre aux patients partenaires de poser des questions et de rencontrer la pr\u00e9sidence du comit\u00e9 d\u2019\u00e9valuation?<\/li>\n<li>Si la r\u00e9union d\u2019\u00e9valuation a lieu en personne, avez-vous pris des dispositions pour que les frais de d\u00e9placement des patients partenaires soient pay\u00e9s \u00e0 l\u2019avance? Les remboursements seront-ils effectu\u00e9s rapidement? Sera-t-il possible d\u2019avoir de l\u2019aide pour remplir une note de frais?<\/li>\n<li>Les aspects logistiques li\u00e9s aux boissons et aux aliments fournis ainsi que les restrictions alimentaires ont-ils \u00e9t\u00e9 pris en compte, que la r\u00e9union se d\u00e9roule virtuellement ou en personne (si possible, la livraison de nourriture est appr\u00e9ci\u00e9e lors des r\u00e9unions virtuelles)?<\/li>\n<li>Les frais de garde d\u2019enfants seront-ils rembours\u00e9s?<\/li>\n<li>Pendant l\u2019\u00e9valuation, les patients partenaires pourront-ils discuter les uns avec les autres afin de se soutenir mutuellement? Votre organisation dispose-t-elle d\u2019un moyen permettant aux patients partenaires de se mentorer l\u2019un l\u2019autre?<\/li>\n<li>Allez-vous simplifier au maximum le processus pour les patients partenaires?<\/li>\n<li>Allez-vous d\u00e9signer une personne-ressource au sein de votre organisation qui sera en mesure de r\u00e9pondre aux questions des patients partenaires?<\/li>\n<li>Existe-t-il un glossaire que les patients partenaires peuvent consulter s\u2019ils rencontrent certains termes qu\u2019ils ne connaissent pas?<\/li>\n<li>Les patients partenaires savent-ils comment d\u00e9clarer un conflit d\u2019int\u00e9r\u00eats s\u2019ils connaissent les auteurs des demandes?<\/li>\n<li>S\u2019il existe des documents relatifs \u00e0 la confidentialit\u00e9 de l\u2019\u00e9valuation, sont-ils r\u00e9dig\u00e9s dans un langage facile \u00e0 lire et \u00e0 comprendre et les expliquerez-vous aux patients partenaires?<\/li>\n<li>Indiquerez-vous clairement si le versement d\u2019une r\u00e9tribution est pr\u00e9vu? Votre organisation fournira-t-elle des documents de nature fiscale \u00e0 cet \u00e9gard?<\/li>\n<\/ul>\n<h2><strong>Durant la r\u00e9union d\u2019\u00e9valuation par les pairs<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p><strong>Patients partenaires<\/strong> <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/patients-partenaires\/\" rel=\"attachment wp-att-510\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-510\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patients-partenaires.png\" alt=\"\" width=\"64\" height=\"43\" \/><\/a><\/p>\n<ul>\n<li>La r\u00e9union et son fonctionnement m\u2019ont-ils \u00e9t\u00e9 bien expliqu\u00e9s?<\/li>\n<li>Si la r\u00e9union d\u2019\u00e9valuation est virtuelle, faut-il que je laisse ma cam\u00e9ra allum\u00e9e durant toute la r\u00e9union?<\/li>\n<li>Serai-je invit\u00e9 \u00e0 commenter des demandes qui ne m\u2019ont pas \u00e9t\u00e9 attribu\u00e9es?<\/li>\n<li>\u00c0 quel moment serai-je invit\u00e9 \u00e0 faire part de mes commentaires?<\/li>\n<li>Y aura-t-il des pauses pendant la r\u00e9union? Sont-elles suffisantes pour moi? Qu\u2019en est-il si je dois me d\u00e9placer pendant la r\u00e9union (virtuelle ou en personne)?<\/li>\n<li>Si la r\u00e9union est virtuelle, quel sera l\u2019outil technologique utilis\u00e9? Que se passera-t-il si j\u2019ai besoin d\u2019aide?<\/li>\n<li>Si je me trouve en situation de conflit d\u2019int\u00e9r\u00eats avec une demande faisant l\u2019objet d\u2019une discussion, que se passera-t-il?<\/li>\n<\/ul>\n<p><strong>Responsables et organismes <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/responsables-et-organismes\/\" rel=\"attachment wp-att-511\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-511\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Responsables-et-organismes.png\" alt=\"\" width=\"86\" height=\"57\" \/><\/a><\/strong><\/p>\n<ul>\n<li>Avez-vous expliqu\u00e9 le fonctionnement de la r\u00e9union aux patients partenaires?<\/li>\n<li>Les r\u00e8gles de biens\u00e9ance ont-elles \u00e9t\u00e9 expliqu\u00e9es \u00e0 tous les participants (p.\u00a0ex. d\u00e9placements et \u00e9tirements entre les pauses, activation et d\u00e9sactivation des cam\u00e9ras pendant les r\u00e9unions virtuelles)?<\/li>\n<li>Avez-vous pr\u00e9vu suffisamment de pauses? Gardez \u00e0 l\u2019esprit que des pauses fr\u00e9quentes seraient b\u00e9n\u00e9fiques \u00e0 de nombreux patients partenaires (ainsi qu\u2019\u00e0 tous les \u00e9valuateurs).<\/li>\n<\/ul>\n<h2><strong>Apr\u00e8s la r\u00e9union d\u2019\u00e9valuation par les pairs<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p><strong>Patients partenaires<\/strong> <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/patients-partenaires\/\" rel=\"attachment wp-att-510\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-510\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Patients-partenaires.png\" alt=\"\" width=\"64\" height=\"43\" \/><\/a><\/p>\n<ul>\n<li>Tous mes documents li\u00e9s aux \u00e9valuations ont-ils \u00e9t\u00e9 soumis?<\/li>\n<li>Recevrai-je les notes ou le proc\u00e8s-verbal de la r\u00e9union et saurai-je quels projets ont \u00e9t\u00e9 financ\u00e9s?<\/li>\n<li>Puis-je formuler des commentaires sur mon exp\u00e9rience? Quelle sera la m\u00e9thode utilis\u00e9e pour ce faire (p. ex. un sondage anonyme ou une r\u00e9union)? Me convient-elle?<\/li>\n<li>Recevrai-je des commentaires sur mon travail afin que je puisse apprendre du processus?<\/li>\n<li>Pourrai-je discuter de mon exp\u00e9rience avec d\u2019autres patients partenaires recrut\u00e9s comme \u00e9valuateurs par cet organisme?<\/li>\n<li>Aimerais-je participer au processus d\u2019\u00e9valuation par les pairs de cet organisme de nouveau et, si oui, l\u2019ai-je indiqu\u00e9 \u00e0 ma personne-ressource?<\/li>\n<\/ul>\n<p><strong>Responsables et organismes <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/responsables-et-organismes\/\" rel=\"attachment wp-att-511\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-511\" src=\"https:\/\/blogs.ubc.ca\/imhablog\/files\/2023\/06\/Responsables-et-organismes.png\" alt=\"\" width=\"86\" height=\"57\" \/><\/a><\/strong><\/p>\n<ul>\n<li>Avez-vous clairement indiqu\u00e9 que les notes ou le proc\u00e8s-verbal de la r\u00e9union seront remis aux \u00e9valuateurs et le moment auquel ils le seront?<\/li>\n<li>Disposez-vous d\u2019un m\u00e9canisme de collecte des commentaires vous permettant de savoir comment le processus s\u2019est d\u00e9roul\u00e9 pour les patients partenaires (et ce processus convient-il \u00e9galement aux commentaires n\u00e9gatifs)? Avez-vous expliqu\u00e9 clairement la fa\u00e7on dont les commentaires seront utilis\u00e9s pour am\u00e9liorer l\u2019exp\u00e9rience des autres patients partenaires?<\/li>\n<li>Pr\u00e9voyez-vous fournir aux patients partenaires des commentaires sur leur travail afin qu\u2019ils puissent tirer des le\u00e7ons de leur exp\u00e9rience?<\/li>\n<li>Avez-vous demand\u00e9 aux patients partenaires qui ont particip\u00e9 \u00e0 la r\u00e9union s\u2019ils souhaiteraient revivre cette exp\u00e9rience? Seraient-ils pr\u00eats \u00e0 encadrer d\u2019autres patients partenaires (de mani\u00e8re officielle ou informelle)?<\/li>\n<\/ul>\n<p>\u00c9tant donn\u00e9 que de plus en plus d\u2019organismes font appel \u00e0 l\u2019expertise des patients partenaires, nous esp\u00e9rons que ce billet de blogue a r\u00e9ussi \u00e0 expliquer grosso modo ce qu\u2019est l\u2019\u00e9valuation par les pairs et \u00e0 montrer les types de questions \u00e0 poser et les aspects dont il faut tenir compte pour bien int\u00e9grer les patients partenaires au processus d\u2019\u00e9valuation. Ayant nous-m\u00eames particip\u00e9 \u00e0 des r\u00e9unions durant lesquelles des patients partenaires ont soulev\u00e9 des points auxquels les autres \u00e9valuateurs n\u2019avaient pas pens\u00e9, nous sommes convaincues que l\u2019apport de patients partenaires se traduit par le financement et la r\u00e9alisation de recherches de meilleure qualit\u00e9.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>By: Dawn Richards, Deb Baranec, Eileen Davidson, Trudy Flynn Le fran\u00e7ais suit \/ French follows What is peer review anyway? The peer review process can be strange and slightly confusing if you\u2019re not in academia or new to the process. &hellip; <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2023\/06\/28\/engaging-patient-partners-as-peer-reviewers-of-grant-applications-tips-for-everyone-involved\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":96106,"featured_media":496,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5,1],"tags":[],"class_list":["post-480","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-engagement","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/480","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/users\/96106"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/comments?post=480"}],"version-history":[{"count":25,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/480\/revisions"}],"predecessor-version":[{"id":518,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/480\/revisions\/518"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/media\/496"}],"wp:attachment":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/media?parent=480"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/categories?post=480"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/tags?post=480"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}