{"id":592,"date":"2025-03-04T11:57:16","date_gmt":"2025-03-04T18:57:16","guid":{"rendered":"https:\/\/blogs.ubc.ca\/imhablog\/?p=592"},"modified":"2025-03-04T11:58:42","modified_gmt":"2025-03-04T18:58:42","slug":"illustrating-patient-experiences-illustrer-lexperience-des-patients","status":"publish","type":"post","link":"https:\/\/blogs.ubc.ca\/imhablog\/2025\/03\/04\/illustrating-patient-experiences-illustrer-lexperience-des-patients\/","title":{"rendered":"Illustrating Patient Experiences \/ Illustrer l\u2019exp\u00e9rience des patients"},"content":{"rendered":"<p><em>Le fran\u00e7ais suit \/ French follows<\/em><\/p>\n<p><em>Interview with Candace Ramjohn, By Melody Choi<\/em><\/p>\n<p>Candace Ramjohn, a self-identified &#8220;visual alchemist,&#8221; sees visual media not just as a tool for representation, but as a language, a bridge, and a means of transformation. With a background in design thinking, systems thinking, communications, and traditional arts, she brings diverse perspectives to her work. As a Knowledge Mobilization (KM) specialist with the Alberta SPOR Support Unit, Candace\u2019s approach is deeply shaped by her personal experiences navigating complex health landscapes\u2014both as a patient and a family member. Below, she shares insights into the creative process behind the graphic recordings she created for the <a href=\"https:\/\/pxphub.org\/event\/past-events\/program-2024\/\">2024 PXP (For Patients, By Patients) conference<\/a>, and explores how visual media can transform patient engagement in research.<\/p>\n<p><strong>Why is visual media important to patient engagement?<\/strong><\/p>\n<p>Positioned at the intersection of art and science, visual media is central to how I engage with the world. I see my creative talents as an authentic part of my identity, something that allows me to make a meaningful difference through a niche that feels deeply personal. As a strong advocate for qualitative, human-centered approaches in health research, I believe that while the academic tradition of scientific rigor and quantitative methods is valuable, it can sometimes overshadow the rich, human stories at the heart of a patient\u2019s journey. Visual storytelling is a way to bridge that gap. I believe that \u201cpeople-centered approaches are essential for culture shifts,\u201d emphasizing that visual media is an approachable and engaging way to understand patient experiences\u2014one that resonates with people from all walks of life.<\/p>\n<p><strong>Can you walk through some of the creative choices you made when conceptualizing this project?<\/strong><\/p>\n<p>When conceptualizing my work, I faced the challenge of capturing the vast diversity of patient experiences while maintaining authenticity. One of the biggest challenges I encountered was ensuring that the final product stood out, while still being respectful and true to the subject matter. I asked myself, &#8220;Which artistic medium will speak to people most effectively? How can I truly honor the essence of each patient&#8217;s story?&#8221; These guiding questions shaped the artistic direction I developed.<\/p>\n<p>As an artist, I generally gravitate toward tactile, organic artforms that engage the senses, but I understood that digital tools were necessary for accessibility. However, one of the beauties of being a self-proclaimed \u201cvisual alchemist\u201d is finding my artistic stride within the circumstances and scope of each new project. I ultimately decided to lean into graphic illustrations and airbrushed-style artwork, consciously avoiding overly abstract or surreal representations. By striking a balance between realistic representation and artistry that mimicked graphic-novels, my goal was to depict each individual as the hero of their own story.<\/p>\n<p><strong>Did you find any quote or session to be particularly impactful? Why did it resonate with you artistically or with your lived experience?<\/strong><\/p>\n<p>I found all of the sessions eye-opening, noticing that each participant\u2019s experience was unique, and the bravery in sharing those stories left a deep impact on me. However, one quote that particularly resonated with me came from <a href=\"https:\/\/pxphub.org\/event\/past-events\/speakers-2024\/#david-gilbert\">David Gilbert<\/a>: \u201cWe\u2019re all experiential practitioners.\u201d This idea\u2014that we are not defined solely by our conditions, but also by the professional knowledge we gain through lived experience\u2014reinforced my intention to depict patients as full individuals, not just their diagnoses.<\/p>\n<p>Reflecting on my own experiences as a patient and caregiver, I recognized how these personal encounters have shaped my artistic approach. They\u2019ve allowed me to empathize deeply with others and have driven me to pursue patient-centered opportunities. My lived experiences have also empowered me to use my art to give others a voice.<\/p>\n<p><strong>What did you find most challenging about capturing the presenters\u2019 knowledge and experiences visually?<\/strong><\/p>\n<p>The biggest challenge I faced in this project was doing justice to the diverse array of patient stories I encountered. I was mindful of cultural sensitivities, equity, diversity, and accessibility, knowing that my artwork had to reflect these values. For instance, I ensured that the images and text were a significant size and was intentional about creating sufficient colour contrast and opacity for distinction throughout each piece. Furthermore, all conference speakers received drafts of images and had the opportunity to request modifications to their visual representation or words. This collaboration was essential to make sure that everyone felt seen, comfortable and accurately represented.<\/p>\n<blockquote class=\"wp-embedded-content\" data-secret=\"DtfbEEgRyB\"><p><a href=\"https:\/\/pxphub.org\/pxp-2024-artworks\/\">PxP 2024 Artworks<\/a><\/p><\/blockquote>\n<p><iframe loading=\"lazy\" class=\"wp-embedded-content\" sandbox=\"allow-scripts\" security=\"restricted\" style=\"position: absolute; visibility: hidden;\" title=\"&#8220;PxP 2024 Artworks&#8221; &#8212; PxP\" src=\"https:\/\/pxphub.org\/pxp-2024-artworks\/embed\/#?secret=zhpSqF3XQ3#?secret=DtfbEEgRyB\" data-secret=\"DtfbEEgRyB\" width=\"500\" height=\"282\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\"><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<hr \/>\n<p>&nbsp;<\/p>\n<p><em>Entrevue avec Candace Ramjohn, par Melody Choi<\/em><\/p>\n<p>Pour Candace Ramjohn, qui se d\u00e9finit comme une \u00ab\u00a0alchimiste visuelle\u00a0\u00bb, les m\u00e9dias visuels ne sont pas seulement un outil de repr\u00e9sentation, mais une langue, un pont et un moyen de transformation. Ses exp\u00e9riences en r\u00e9flexion conceptuelle, en pens\u00e9e syst\u00e9mique, en communications et en arts traditionnels ont enrichi son travail de diverses perspectives. En tant que sp\u00e9cialiste de la mobilisation des connaissances (MC) pour l\u2019Unit\u00e9 de soutien de la SRAP de l\u2019Alberta, Candace fonde en grande partie son approche sur ses exp\u00e9riences personnelles, o\u00f9 elle a d\u00fb \u2013\u00a0tant comme patiente que comme membre de la famille\u00a0\u2013 se frayer un chemin dans l\u2019univers complexe de la sant\u00e9. Dans cette entrevue, elle nous d\u00e9voile le processus cr\u00e9atif derri\u00e8re les enregistrements graphiques qu\u2019elle a cr\u00e9\u00e9s pour la conf\u00e9rence <a href=\"https:\/\/pxphub.org\/fr\/event\/past-events\/program-2024\/\">PxP\u00a02024 (par les patients, pour les patients)<\/a> et revisite la mani\u00e8re dont les m\u00e9dias visuels peuvent transformer la mobilisation des patients dans la recherche.<\/p>\n<p><strong>Pourquoi les m\u00e9dias visuels sont-ils importants pour la mobilisation des patients?<\/strong><\/p>\n<p>Situ\u00e9s \u00e0 l\u2019intersection de l\u2019art et de la science, les m\u00e9dias visuels sont pour moi une fa\u00e7on importante de participer au monde qui m\u2019entoure. Je consid\u00e8re mes talents artistiques comme une v\u00e9ritable partie de mon identit\u00e9, quelque chose qui me permet de changer la donne dans un domaine qui me concerne personnellement. En tant que fervente d\u00e9fenderesse des approches qualitatives et centr\u00e9es sur la personne dans la recherche en sant\u00e9, je crois que, bien que la rigueur scientifique et les m\u00e9thodes quantitatives universitaires traditionnelles soient pr\u00e9cieuses, elles peuvent parfois faire de l\u2019ombre aux riches exp\u00e9riences humaines qui se trouvent au c\u0153ur du parcours des patients. Les r\u00e9cits visuels sont une mani\u00e8re de combler ces lacunes. Je crois que les \u00ab\u00a0approches centr\u00e9es sur la personne sont essentielles aux changements de culture\u00a0\u00bb\u00a0: les m\u00e9dias visuels sont une mani\u00e8re accessible et motivante de comprendre l\u2019exp\u00e9rience des patients et de rejoindre des personnes de tous les horizons.<\/p>\n<p><strong>Pourriez-vous nous d\u00e9crire certains des choix cr\u00e9atifs que vous avez faits lors de la conceptualisation de ce projet?<\/strong><\/p>\n<p>Lors de la conception de mon \u0153uvre, il m\u2019a \u00e9t\u00e9 difficile de m\u2019assurer de rendre la vaste diversit\u00e9 des exp\u00e9riences des patients tout en maintenant l\u2019authenticit\u00e9. L\u2019un des plus grands d\u00e9fis auxquels j\u2019ai d\u00fb faire face \u00e9tait de m\u2019assurer que le produit final allait se d\u00e9marquer tout en respectant le th\u00e8me et en y restant fid\u00e8le. Je me suis demand\u00e9\u00a0: \u00ab\u00a0Quel m\u00e9dia artistique serait le plus parlant pour ces personnes? Comment pourrais-je r\u00e9ellement faire honneur \u00e0 l\u2019essence du r\u00e9cit de chaque patient?\u00a0\u00bb Ces questions ont servi \u00e0 orienter la direction artistique que j\u2019ai prise.<\/p>\n<p>En tant qu\u2019artiste, je me laisse g\u00e9n\u00e9ralement guider par les formes d\u2019art tactiles et organiques qui impliquent les sens, mais j\u2019ai compris que les outils num\u00e9riques \u00e9taient n\u00e9cessaires \u00e0 l\u2019accessibilit\u00e9. Toutefois, l\u2019un des avantages de s\u2019identifier comme \u00ab\u00a0alchimiste visuelle\u00a0\u00bb est de laisser les circonstances et la port\u00e9e de chaque nouveau projet d\u00e9cider de mon rythme artistique. J\u2019ai finalement d\u00e9cid\u00e9 de me tourner vers l\u2019illustration graphique et l\u2019a\u00e9rographie, en \u00e9vitant volontairement les repr\u00e9sentations trop abstraites ou surr\u00e9alistes. En trouvant le juste milieu entre la repr\u00e9sentation r\u00e9aliste et l\u2019art du roman graphique, mon objectif \u00e9tait de d\u00e9peindre chaque personne comme le h\u00e9ros de sa propre histoire.<\/p>\n<p><strong>Y a-t-il une citation ou une s\u00e9ance qui vous a particuli\u00e8rement frapp\u00e9e?<\/strong><strong> Pourquoi cela vous touchait-il sur le plan artistique ou personnel?<\/strong><\/p>\n<p>Toutes les s\u00e9ances ont \u00e9t\u00e9 r\u00e9v\u00e9latrices pour moi. J\u2019ai pu constater que chaque exp\u00e9rience est unique. Le courage dont faisaient preuve ces personnes qui racontaient leur histoire m\u2019a profond\u00e9ment marqu\u00e9e. Cela dit, une citation que j\u2019ai trouv\u00e9 particuli\u00e8rement inspirante est celle de <a href=\"https:\/\/pxphub.org\/fr\/event\/past-events\/speakers-2024\/#david-gilbert\">David\u00a0Gilbert<\/a>\u00a0: \u00ab\u00a0Nous sommes tous des praticiens exp\u00e9rientiels\u00a0\u00bb. Cette id\u00e9e \u2013\u00a0que nous ne sommes pas seulement d\u00e9finis par notre \u00e9tat de sant\u00e9, mais \u00e9galement par les connaissances professionnelles que nous apportent les exp\u00e9riences de la vie\u00a0\u2013 a renforc\u00e9 mon intention de d\u00e9peindre les patients comme des personnes \u00e0 part enti\u00e8re et non seulement comme porteuses d\u2019un diagnostic.<\/p>\n<p>En repensant \u00e0 mes propres exp\u00e9riences comme patiente et comme aidante naturelle, j\u2019ai r\u00e9alis\u00e9 \u00e0 quel point ces rencontres avaient fa\u00e7onn\u00e9 mon approche artistique. Elles m\u2019ont permis d\u2019acqu\u00e9rir une profonde empathie pour l\u2019\u00eatre humain et m\u2019ont encourag\u00e9e \u00e0 trouver d\u2019autres occasions de travail ax\u00e9 sur les patients. Mes exp\u00e9riences personnelles m\u2019ont aussi donn\u00e9 les moyens d\u2019utiliser mon art pour donner une voix aux autres.<\/p>\n<p><strong>Qu\u2019avez-vous trouv\u00e9 le plus difficile dans l\u2019illustration des connaissances et des exp\u00e9riences des pr\u00e9sentateurs?<\/strong><\/p>\n<p>Mon plus grand d\u00e9fi dans ce projet \u00e9tait de rendre justice \u00e0 la vaste diversit\u00e9 des histoires que les patients avaient \u00e0 raconter. Consciente des valeurs que mon \u0153uvre se devait de v\u00e9hiculer, j\u2019ai tenu compte des sensibilit\u00e9s culturelles, de l\u2019\u00e9quit\u00e9, de la diversit\u00e9 et de l\u2019accessibilit\u00e9. Par exemple, j\u2019ai veill\u00e9 \u00e0 ce que les images et le texte soient d\u2019une taille appropri\u00e9e, et j\u2019ai volontairement cr\u00e9\u00e9 suffisamment de contrastes de couleur et d\u2019opacit\u00e9 pour que chaque \u00e9l\u00e9ment puisse \u00eatre distingu\u00e9 plus facilement. De plus, tous les pr\u00e9sentateurs de la conf\u00e9rence ont re\u00e7u un \u00e9chantillon de mes images et ont pu demander des modifications \u00e0 leur repr\u00e9sentation visuelle ou aux mots. Cette collaboration \u00e9tait essentielle pour que tout le monde puisse se sentir vu, \u00e0 l\u2019aise et repr\u00e9sent\u00e9 de fa\u00e7on ad\u00e9quate.<\/p>\n<blockquote class=\"wp-embedded-content\" data-secret=\"IzCpHPoeoX\"><p><a href=\"https:\/\/pxphub.org\/fr\/pxp-2024-artworks\/\">PxP 2024 Artworks<\/a><\/p><\/blockquote>\n<p><iframe loading=\"lazy\" class=\"wp-embedded-content\" sandbox=\"allow-scripts\" security=\"restricted\" style=\"position: absolute; visibility: hidden;\" title=\"\u00ab\u00a0PxP 2024 Artworks\u00a0\u00bb &#8212; PxP\" src=\"https:\/\/pxphub.org\/fr\/pxp-2024-artworks\/embed\/#?secret=nOrqlE8sLb#?secret=IzCpHPoeoX\" data-secret=\"IzCpHPoeoX\" width=\"500\" height=\"282\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\"><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Le fran\u00e7ais suit \/ French follows Interview with Candace Ramjohn, By Melody Choi Candace Ramjohn, a self-identified &#8220;visual alchemist,&#8221; sees visual media not just as a tool for representation, but as a language, a bridge, and a means of transformation. &hellip; <a href=\"https:\/\/blogs.ubc.ca\/imhablog\/2025\/03\/04\/illustrating-patient-experiences-illustrer-lexperience-des-patients\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":91514,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-592","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/592","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/users\/91514"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/comments?post=592"}],"version-history":[{"count":2,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/592\/revisions"}],"predecessor-version":[{"id":595,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/posts\/592\/revisions\/595"}],"wp:attachment":[{"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/media?parent=592"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/categories?post=592"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.ubc.ca\/imhablog\/wp-json\/wp\/v2\/tags?post=592"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}