Ethics in Participatory Research

Chapter 4: Community rights, conflict and democratic representation.

By Meghna Guhathakurta with cases contributed by Angela Contreras, Shaun Cleaver, Michael J. Kral, Monika Bjeloncikova and Vendula Gojova

This chapter raises some core ethical issues that lie at the heart of community-based participatory research (PR). It foregrounds the tensions between the collective and the individual, the ‘insider’ and ‘outsider’ viewpoints, inter-community and intra-community conflict and issues of representation in democratic contexts.

Ethics in Participatory Research for Health and Social Well-Being: Cases and Commentaries. Edited By Sarah Banks, Mary Brydon-Miller

1st Edition
First Published 2018
eBook Published 6 August 2018
London, UK
Routledge
Pages 242 pages
eBook ISBN 9781315106847

Participatory research is well-established as an approach involving people with a direct interest in, or experience of, the issue being studied in carrying out research. However, it raises unique and challenging ethical issues. Traditional concerns with respect for the rights to confidentiality, consent, privacy and protection of ‘research informants’ do not translate easily into participatory research. Boundaries between researchers and those researched are often blurred; research trajectories may be emergent and unpredictable; and major ethical issues revolve around partnership, power, equality and respect for diverse knowledges.

The book introduces the key ethical issues in participatory research, drawing on ethical theory and relevant literature before presenting seven substantive chapters, each on a different theme, such as power, ownership, confidentiality and boundaries. The chapters feature an introductory overview of the topic with reference to the literature, followed by four real-life case examples written by participatory researchers and short commentaries on each case. Drawn from around the world (from Denmark to Tanzania), the cases illustrate a range of ethical issues, outlining how they were handled and the reflections and feelings of the contributors.

Focusing on developing ethical awareness, confidence and courage to act in ethically challenging situations in everyday research practice, this book is an invaluable resource for all participatory researchers.

Link to publisher:  https://www.taylorfrancis.com/books/e/9781315106847

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