Step 5: Is This Really Happening?

Now you know!

And you have mixed feelings about what you know.

Part of you could be relieved that you finally have answers. Another part of you could be angry or upset that your worst fear has now become a reality.

You may be very confused (Fig. 1) because you now know for sure, that you will need to make some changes to the way you and your entire family live your lives.

Figure 1. Confused and worried

After you come to terms with your child’s diagnosis (something that could take a long time to achieve), the next big part of your journey begins.