Category Archives: ethics

Inclusive, anti-racist writing & knowledge representation

The new semester begins for many Universities with a ‘scholar strike,’ an action to draw attention to the Black Lives Matter movement, but also to all forms of racism and the privilege that many Whites have in relation to others, referred to collectively as BIPOC. (Black, Indigenous, People of Colour). This strike is meant to be a continuation of the need to undo Indigenous invisibility, anti-Blackness, dismantle white supremacy and advance racial justice.

Within research this can mean a number of things: listening to and learning about Indigenous research methodologies, reading research conducted by BIPOC, learning to talk, write, and review research in inclusive ways.

Inclusive, Anti-Racist Writing

Representation of knowledge is often overlooked as a critical element of research and when we adopt taken for granted ways of writing, representing and publishing we ignore the growing concerns for BIPOC. One place to start is with this book by Gregory Younging wherein he develops a principled way of writing about and writing from within an Indigenous worldview.

Younging elaborates on this set of ideas for writing and publishing:

1. Avoid using the past tense when you write about Indigenous Peoples.

Indigenous Peoples are not a historical phenomenon; they have not been assimilated into Canadian culture and they have not lost their own rich, distinct cultures. Indigenous Peoples are diverse, authentic, empowered and current.

2. Do not use language which props up the colonial idea that Indigenous Peoples are incapable of taking care of things themselves.

This manifests itself in language that implies Indigenous Peoples have no agency.

3. Do not use the possessive when talking about the Indigenous Peoples who live in a country.

Canada doesn’t “own” the First Nations, Métis or Inuit Peoples who live in what is now called Canada.

4. Do not whitewash Indigenous Peoples out of history.

5. Think about Indigenous Knowledge as holding its own copyright.

Give Oral Traditions and Traditional Knowledge the same weight and respect as printed texts. You need to ask for permission before reprinting Oral Traditions and Traditional Knowledge, exactly as you would with written texts.

6. Be prepared for consultation to take time.

Be aware that no one person is able to give permission; if copyright is held by a Nation, then there needs to be a proper consultation practice about sharing.

7. Collaborate and seek permission when writing about Traditional Knowledge.

If you’re writing about Indigenous People then contact them and discuss what you’d like to do. Be aware that Indigenous Protocols — which are more formal than “customs” — need to be adhered to, and often it may not be appropriate to write about matters which have sacred significance, or perhaps contain stories which may only be told by women, men, or at a particular time of the year.

8. Do not repeat inaccurate and offensive material.

9. Always choose Indigenous Style.

Capitalization may not be where you’d expect to see it. Use Indigenous style: Aboriginal, First Nations, Indigenous, Elder,  Longhouse, Clan, and so on.

10. Respect Elders.

Be aware of the important role of Elders within Indigenous societies and their role as holders of Traditional Knowledge and as community advisors.

11. Recognize and respect distinct and diverse Indigenous Peoples.

The Indigenous population in Canada is made up of Inuit, Métis, and some 634 different First Nations. Each has their own distinct Traditional Knowledge, culture and heritage. Avoid writing about ‘First Nations’ as though they are a homogenous group; instead, be specific and ask for people’s preferred self-declaration.

12. Understand Indigenous cultures do not need to be static to be authentic.

Indigenous Peoples are currently engaged in a period of cultural reclamation and rejuvenation. Indigenous cultures are dynamic and undergo natural change and adaptation, just like other cultures, and there are many manifestations of authentic indigeneity. This point is core to Thomas King’s work: The Inconvenient Indian and The Truth About Stories: A Native Narrative.

 

Ethics

I use this prezi when I teach about research ethics.

This issue of Forum: Qualitative Social Research has an extensive special section on research ethics. Topics include: conceptual frameworks, ethics codes and research review practices, and ethical issues in many different particular research contexts (indeed, most of the issue focuses on ‘ethics in practice’).

The Introduction concludes with this coda:

The present collection of studies concerning ethics in qualitative research bears testimony that the research community has come a long way from where it still had been in the 1960s, when research was conducted that obviously harmed participants and bystanders. It is exciting to see that qualitative researchers tend to treat ethics not as a code but as a characteristic of the relation between researcher and researched. Once we consider the relation as an event (rather than thing), it is immediately apparent that ethical questions never are resolved with some formal institutional approval of the research. Instead, ethical questions are aspects of human life and relations and thus continuously pose themselves anew, remain for a while, and die away only to be reborn again in some other form.

embeddedness, truth & complexity

Fifteen years after the Iraq War began, Magnum photographers are reflecting on being embedded with the U.S. military and how it affected the work produced during the conflict. While the practice of embedding journalists is not new it very much came to the public’s attention during the Iraq and Afghanistan wars, estimates are there were 700+ journalists and photographers embedded with American military troops.

There is much controversy about this practice, some of which is highlighted in the Magnum photographers reflections. A key issue is the sympathetic and dependent relationship with the military, one that lead to what some journalists referred to as propagandizing.

We were a propaganda arm of our governments. At the start the censors enforced that, but by the end we were our own censors. We were cheerleaders.   Charles Lynch

Primary issues are:

objectivity: embedding potentially makes journalists tools of the military whose access and message can be manipulated and controlled; provides an insider view of military life; doesn’t allow for access to life in the context, the life of those against whom war is waged

access: embedding provides journalists with access in otherwise unsafe contexts

What does this have to do with research?

The same embedding strategy was used for anthropologists and other social scientists. Since 2007, the Pentagon’s Human Terrain System (HTS) started placing social scientists in every Army combat brigade, regiment and Marine Corps regimental combat team in order to improve the Army’s cultural IQ. The HTS has now been phased out, not because of ethical issues but because there were insufficient on the ground troops to warrant the program. Indeed, the protests of professional associations had little impact on the existence of the HTS. This article is a good summary of the HTS.

It is important to note, collaborations between social scientists and the military did not begin with Iraq, but have always been controversial. For example, Project Camelot, a program intended to help the U.S. Army assist friendly Latin American governments in dealing with insurgency as well as influence social and economic development, didn’t survive once it became public.

Nonetheless, it is useful to ask what has been learned?

  1. The ethical dilemmas presented by embeddedness are significant. Basic premises of informed consent are by definition ignored and violated.
  2. It is critical to ask how the methodological and value traditions of social science might be compromised/affected by the invitation to participate by one side of the conflict in a military zone. Will cultural knowledge be used against those in the invaded country/region, for example? Is the work meant to create knowledge or intelligence? What is the relationship between social science and politics?
  3. What are likely consequences the work will be controlled by the military, in other words, what is the likelihood of becoming a legitimation of propaganda?

These questions remain relevant because, at least on the military side, a desire to use the knowledge and skills of social scientists is still deemed useful, and there is the possibility the HTS has been reinvented under a new name, the Global Cultural Knowledge Network.

Learning to be a better researcher… by being a research participant

section_volunteerResearchers are egocentric… the research they do stems from their interests and motivations. That’s a given. Within interpretive research methodologies this egocentric position is tempered by the interpersonal intersection of researchers’ interests with those of their research participants. Mostly I am a researcher, but I have also been a research participant and these different vantage points provide useful lessons for thinking about how we conceptualize research participants’ engagement with us and how we treat those who participate in our research.

In general, the interests of the researcher are more important, and procedures to protect research participants are institutionalized through research review boards. For example, research participants’ identities are anonymized to encourage them to participate and protect them from harm, embarrassment, possibly even legal sanctions should the details of their lives become known. (Whether this makes sense is debatable ~  for a good discussion see Jan Nespor’s article Anonymity and place in qualitative research.)

But, equally important is the shield anonymity provides the researcher, shielding them from research participants’ challenges if and when they see how their experiences, thoughts, and emotions are used as data, as well as shielding them from professional critique since data sources (and often data) are held in secret (this is, in part, the current criticism leveled against Alice Goffman). I was able to read the research report of the study I participated in because I know how to access research, cultural capital that researchers might safely assume (hope?) most research participants don’t have.

Narratives of Research Participant Reaction

Here are three sketches of research participant reaction to a published account of the research in which they were involved. All are real. There are a number of lessons to be learned, but I will draw out just a couple.

1. In an introductory doctoral level interpretive research course students read Lois Weis’ Working Class Without Work, a study of an upstate NY high school. A student in the course had been a student in that high school and felt Weiss had understood well some of the gender related occupational aspirational conflict, but demonstrated misunderstandings of the role of the school in students’ future aspirations.

2. I read the dissertation, the report of the research I participated in, and found conversations between myself and the researcher that were not about the research focus had been included as data to corroborate evidence of my behavior and motivations as a mother. I was unaware of this until I read the completed dissertation as neither the analysis nor final dissertation were shared with the research participants.

3. A doctoral student used narrative inquiry to investigate parental experiences dealing with adult children with mental illness. His decision to use a first person story telling strategy was seen as misrepresentation by one parental participant who withdrew consent for including their data in the study.

Involving Research Participants to Get It ‘Right’

As researchers we want to get it as ‘right’ as we can and there are a number of strategies often invoked to do so. The most common are developing a habit of self-reflexivity (often manifest in journal writing), member-checking (an unfortunate term introduced by Guba & Lincoln), using key informants, and peer debriefing. These strategies are of value only if we as researchers practice them seriously.

Member-checking or informant feedback (the term I’ll use) is when researchers share research data, analysis or reports with participants to ensure categories, constructs, explanations and interpretations “ring true” and to explore what might be missing. This is a much talked about and seldom used strategy.

I suspect most researchers avoid informant feedback because it entails: the possibility of creating more, new data (like in sketch #1 and #2); invites potential disagreements and conflict with research participants (like in all three sketches); and invites research participants to opt out of the research study should they not like what they see or how they are represented (like happened in sketch #3). I also suspect most researchers do not see the value in the iterative process of multiple engagements with research participants in the space of data making and interpretation, seeing them as worthy of one but not multiple viewings (like in sketch #1 and #2). Within any interpretivist or critical research methodology this is a contradictory stance, and in establishing respectful relationships with research participants this is a disrespectful stance.

I suspect most researchers worry about the purpose, conditions and consequences of seeking informant feedback ~ can research participants give informed, useful feedback? should I change what I’ve written? does the research participant have veto power? will I destroy the rapport I have if research participants don’t agree with my analysis? Informant feedback is more likely to lead to confusion and contradiction than confirmation and clarity ~ a situation, which I have argued in delineating the process of triangulation, that ought to be invited not avoided by researchers. This is critically important.  If researchers use informant feedback they should think in advance how feedback will be used and to be transparent with research participants about that.

It is also critical to care about whether you are getting it as ‘right’ as possible, and that means not avoiding informant feedback because it may challenge your ideas. Regrettably, this avoidance is safeguarded by the conventions of anonymity and confidentiality that shield researchers from engagement with research participants who cede their right to engage publicly with the researcher by agreeing to those conventions ~ a Gordian knot.

Presentation of Self as Researcher

I suggest novice researchers develop a 30 second or so introduction of themselves as researchers to be used in the research context. A reminder to all that you are here as a researcher and what you are interested in… over the course of a research study it will be needed less and less but it should also be a reminder to self. Screen Shot 2015-07-07 at 12.49.20 PM If we have extended interactions with research participants it is easy to forget that we are researchers and not friends, neighbours, confidants, compatriots, lovers, and so on. We may become those things, but then we are no longer just researchers and the challenge of distinguishing what is within the parameters of the research becomes cloudy, and we may enter into a murky moral ambiguity of ethics and intimacy. (The classic example of this is Harry Wolcott’s relationship with Brad, summarized from his perspective in his book Sneaky Kid and It’s Aftermath.)

Researchers bear greater responsibility than research participants to maintain clarity about their role and their legitimate access to or defining what is data, what is within the boundaries of the research project. In sketch #2, some of my conversations with the researcher had nothing to do with the research topic. I gave this no thought at the time but implicitly assumed they were interactions between if not friends then perhaps a professor and doctoral student, the other most significant roles we played in relation to one another. Even as an experienced researcher, I was naive as a research participant and let the researcher in on too much of my life ~ even being ‘friends’ on Facebook during the research to then be unfriended upon completion of the research project. I mistook this gesture as ‘friendship’ when in hindsight it was data collection, albeit never negotiated as such with me.

Being clear that we are researchers should be ever present in our minds, but as researchers we need to insure it is ever present in research participants’ minds as well. “Anything you say [or do] can and will be used as data by me” might be more useful at protecting research participants than many of the promises institutionalized by research review boards.

We should remind ourselves…

narcissism should not prevail

and being a researcher is simply not a license to tell all.

 

 

publicity for research brings fame AND scrutiny

Two recent studies have captured the attention of the media and considerable publicity: Alice Goffman’s book On the Run and Michael LaCour’s now retracted Science article. In both cases, the researchers’ work garnered substantial attention in the popular media, and while each also has important possibilities for social change the primary focus has been on how the research was done, including the ethicality of the researchers.

9780226275406Goffman’s work is unusual in academe, research that has so captured the public attention that it has led to a TED talk, a speaking tour, possible TV and movie deals, and a trade paperback reprint. Stunning success for any assistant professor. The University of Chicago Press has had a hand in the promotion of the book, marketing it as one would a trade book including an NPR interview.

Her work has won accolades within academe as well ~ Goffman won the American Sociological Association dissertation award for her work, which is described as a major contribution to the study of U.S. poverty and racial inequality. It has also been favorably reviewed within the discipline ~ here, for example. This is a potentially important study in the wake of recent police violence against Black Americans that especially captured media attention when a white cop killed Michael Brown, a young black man in Ferguson, MO.
RetractionNoticeSSMstudy0515

LaCour’s study also won the attention of the popular media because of the incredible claim that people’s views about same sex marriage could be changed through a short conversation with someone who supported the position. Ground breaking findings in political science! This study appeared in a peer reviewed highly regarded journal, one that is directed to a very broad audience of scientists rather than a specific discipline.

The reasons for retracting the paper are as follows: (i) Survey incentives were misrepresented. To encourage participation in the survey, respondents were claimed to have been given cash payments to enroll, to refer family and friends, and to complete multiple surveys. In correspondence received from Michael J. LaCour‘s attorney, he confirmed that no such payments were made. (ii) The statement on sponsorship was false. In the Report, LaCour acknowledged funding from the Williams Institute, the Ford Foundation, and the Evelyn and Walter Haas Jr. Fund. Per correspondence from LaCour‘s attorney, this statement was not true. (ii) The statement on sponsorship was false. In the Report,LaCour acknowledged funding from the Williams Institute, the Ford Foundation, and the Evelyn and Walter Haas Jr. Fund. Per correspondence from LaCour‘s attorney, this statement was not true.

Retraction Watch has chronicled the events around the retraction and responses of the two authors.

Research Issues 

It is a good thing when research findings become part of the public discourse about important issues… that is a critical role for researchers and research in contemporary society. With that publicity (whether fostered by a publisher or a researcher) comes a level of scrutiny perhaps with a spoonful of envy from other researchers. In both these cases, it was other researchers who are calling Goffman and LaCour out.

So what might we learn from these two cases. Here are some initial thoughts.

The Data Record ~ Goffman destroyed her data claiming she needed to protect her research participants and LaCour destroyed his claiming that was standard protocol. Neither position is tenable nor standard practice. While protecting research participants is of critical importance (and too often researchers blithely make a promise they may not be able to keep) but Goffman should be prepared to stand behind her promise and retain her data. And, it would seem now that LaCour may never have had data to destroy, he just said he destroyed it.

Triangulation ~ Goffman was either naive or is depending on the naiveté of her readers. Many of the critiques are reasonable requests for either corroboration, explanation or clarification. One example is her claim that, “The officers told me they had come to the hospital with a shooting victim who was in custody, and as was their custom, they ran the names of the men on the visitors’ list” has been challenged on many levels, including the unlikelihood that hospitals would release this information and that no one (and several researchers have tried) has been able to find hospitals, police departments or officers who actually do this. There are several other examples of this sort.

The onus on any researcher is to ask how to provide the best explanation of their data and this requires looking at those data in different ways, often collecting more data to clarify and test veracity.

Ethics ~ There are two contexts for thinking about research ethics: the ethics of the research practice and then ethics within the research practice. Destroying data isn’t acceptable and the ethics of research practice dictate how and for how long data ought to be kept, how to best maintain confidentiality and anonymity of research participants, honesty about sponsorship, and so on. Both Goffman and LaCour made major mistakes, and one can safely assume they acted purposefully and wrongly. In other words, there is no reason to believe they didn’t know better. LaCour’s fabrications are most egregious and his response has served only to confirm his unethical research practice.

But there is also the ethics within research practice, a much murkier gray area. Researchers, especially those doing the kind of fieldwork Goffman conducted, will necessarily encounter ethical dilemmas that arise as a result of being in the field. Her decision to live in the community she studied, and to live with some of her research participants isn’t a wrong choice (for all the critics that claim this is so, they would deny years of ethnographic research??) but it does inevitably challenge the researcher to make difficult choices. Likewise the criticism that she was not like the research participants (young black men) is an old irrelevant criticism ~ as Brian Fay has argued, “you don’t have to be one to know one.”

A number of critiques of Goffman’s work center on the ethics within research practice and are good fodder for discussions about how to do research well, in ways that respect research participants, and that leave room for researchers to explore areas of social life that may involve the illegal, immoral and unconventional fabric of human existence. These discussions are healthy for research, and the issues raised reinforce the importance of educating novice researchers about ethics beyond the ethics of research practice dictated by institutional conventions, like research review boards.

confidentiality ~ the case of the Belfast Project

For years, the researchers painstakingly recorded and transcribed oral histories from many of the leaders of the factions caught up in the Troubles in Northern Ireland. They pledged absolute secrecy to their subjects until after their deaths.

This is not your typical and straightforward case of researchers’ data becoming embroiled in a legal battle, and I’ve no sense that I understand all the details, players, and consequences. In Secrets from Belfast: How Boston College’s oral history of the Troubles fell victim to an international murder investigation, Chronicle of Higher Ed reporter Beth McMurtrie gives a pretty full account of the matter. And CNN had a 2012 story, Secrets of the Belfast Project, and the text of a conference paper, The Belfast Project and the Boston College Subpoena Case about the initial subpoena was written by Anthony McIntyre. And, a good overview of the issues around resisting subpoena’s for research data can be found on the Institutional Review Blog.

That this was not a research project is apparent ~ it was not conducted by BC researchers, it was described as not your typical oral history, and there was no participation by BC institutional research review board.  Belfast Project’s organizers were: Thomas Hachey, BC’s head of Irish programs; Ed Moloney, project director and journalist; Anthony McIntyre, project interviewer, historian, and former IRA member; and Robert O’Neill, head of the Burns Library at BC.

One imagines that BC’s motivations were complex:

An Irish-American success story, BC has risen from a modest 19th-century college, founded to educate the children of poor Irish immigrants, into a prestigious institution with an endowment of nearly $2-billion. It has proudly maintained its connections to Ireland through its Irish collection at the Burns Library, its Irish-studies program, and its Irish Institute, which attempts to promote reconciliation in Ireland and Northern Ireland through professional-development programs.

Some have suggested that had there been IRB review and approval for the project, none of this would have happened. This is unlikely, as IRBs are relatively feeble guardians of confidentiality. And, this is a serious problem for research (oral history is certainly a prime example) where narrators, participants, and sources are necessarily named. Others have noted the chilling effect the successful subpoena will have on research on criminal, political and violent social phenomena.

This case is a mess and there is little reason to believe we understand all that is going on. However, researchers continue to do research and the legal and criminal battle around the Belfast Project should provide fodder for continued debate about how research can be done ethically, especially when the focus is something illegal or criminal. Just a few take aways:

  1. researchers should be more cautious about the promises of confidentiality they make… simply saying it isn’t much of a guarantee, but explicitly considering how and if indeed confidentiality is necessary is essential
  2. new strategies for protecting confidentiality are needed, so leaks to the press and police are avoided
  3. universities need to step up to the legal plate and defend researchers and all of the IRB hoops they ask researchers to jump through… if researchers are required by the university to promise confidentiality then the university is obligated to defend that promise

See also, my previous posts on the Luka Magnotta case in Ottawa, where the courts upheld the confidentiality of research interviews.

UPDATE: Boston College has agreed to return interview tapes and transcripts to interviewees who request them. It’s the least they can do, but the Belfast Project debacle illustrates how politics and lack of consideration for ethical issues might make very interesting research nearly impossible.

UPDATE: NBC News requested the release of the Belfast Project transcripts, and a federal court judge has ruled against that request.

ethical implications of community based participatory research

Elena Wilson is conducting research about the ethical implications of community based participatory research (CBPR), if and as experienced by the researcher. CBPR researchers may wish to read about other researchers’ experiences or contribute their own comments. More about the project at http://cbprethics.wordpress.com.

Contact: Ms Elena Wilson, PhD Candidate, La Trobe Rural Health School, Faculty of Health Sciences, e5wilson@students.latrobe.edu.au

on the rights of privacy in research that harvests social media for data

Following up on my previous post on the Frontiers of Psychology decision to retract a published paper that investigated conspiratorial ideation by analyzing blog posts, the most recent statement by the Frontiers group re-writes its reasons for the retraction:

Frontiers came to the conclusion that it could not continue to carry the paper, which does not sufficiently protect the rights of the studied subjects. Specifically, the article categorizes the behaviour of identifiable individuals within the context of psychopathological characteristics.

And, they continue: “we also must uphold the rights and privacy of the subjects included in a study or paper.”

A troubling feature of this revised retraction is that is contradicts the first, which asserts there were no ethical issues with the research, but now there are. This does not speak well for the journal, its editors and the umbrella Frontiers group. (See here for commentary about the media coverage of the journal.)

But the heart of the matter is whether the identity of  bloggers who made comments openly and publicly should be protected? The short answer is, no. The key here is that bloggers’ personal comments are public and so once made, bloggers give up their rights to privacy. And indeed, in the discourse one presumes these bloggers do not wish to be anonymous, but to own their viewpoints.  Blog comments are not responses to a researcher’s queries offered in the frame of most social science research, which does offer protection of privacy through confidentiality and anonymity. The blog comments are therefore a legitimate source of found data that support a range of analyses, including in this case what they might reveal about conspiratorial ideation.

I would note though that this matter is not straightforward and harvesting of social media (Facebook, Twitter, blogs) is still new territory for social scientists. There are essentially two positions:

  1. what is archived on the internet is public, and no consent is required from those who created the data
  2. what is archived is public, but the content creators imagined they were writing in private and so consent is required

(See here, for one discussion of both sides,  here for a discussion of the blogosphere as a source of data, here for a commentary on qualitative research blogs. And here for a legal opinion on the matter.)

power over publishing ~when special interest trumps scientific research

In 2012 Stephan Lewandowsky, University of Western Australia published an article in Psychological Science, which analyzed anti-climate change blog comments to explore the idea of conspiratorial ideation. He concludes people who believe in one unsubstantiated conspiracy theory are likely to believe in others. Amusing at times (people who believe Princess Diana was ordered to be murdered by the Royal Family are also likely to agree she faked her own death and is still alive ~ pay no attention to the contradiction) and decidedly not amusing at other times (people who endorse free market economics reject climate change, and a number of other scientific facts like HIV causes AIDS and smoking causes lung cancer ~ pay attention to the potential constraints on improving the quality of individual and collective human life).

This article outraged conspiracy theorists and a maelstrom of protest hit the blogosphere, which Lewandowsky also analyzed and published in a subsequent article in the Frontiers of Psychology, part of the Frontiers conglomerate publishing 45 open access journals in all. This paper was also challenged by the conspirators, and although no fault could be found with the quality or ethics of the research Frontiers has withdrawn the article from the journal with the vague legal issue (read, I think, fear of a lawsuit) as the reason.

But fear not, you can still read the paper, Recursive fury: Conspiracist ideation in the blogosphere in response to research on conspiracist ideation, thanks to academic freedom and the internet. Read more at I Fucking Love Science, here. And, there are no shortage of blogs that follow the climate change deniers (see, for example, Watching the Deniers).

Lewandowsky also talks at length about the controversy and issues.

Stephan Lewandowskay: In Whose Hands the Future? from Peter Sinclair on Vimeo.

What should trouble ALL researchers is that a powerful special interest group has threatened academic freedom, and especially an open access journal that although levying author fees does not likely have the resources to withstand legal challenge in the same way that a for-profit publisher does. Sage Publications, owners of the journal in which the original article was published, never buckled under protest to the original article now referred to as LOG12. Indeed, an investigation by the journal asserted no wrong doing and Lewandowsky’s own university supports him by posting the article on the UWA website, thus also affirming academic freedom. Even more important, this threat is based on deniers skeptics disliking the research topic and conclusions ~ not one based on poor quality research, unethical research practices or failure of the peer review process. This is a chilling prospect for all researchers, but especially so when research challenges powerful ideologies that effect rationale critique and potential positive social change.